January 03
This day one year ago was the day we were diagnosed. It's just a hard day and I remember it well. We were so scared with the news and hated feeling like we had to make a life or death decision. To me it just always felt wrong to terminate and not give Jolee a chance. Hopefully as more can be learned about CDH others can feel more hopeful as they face this diagnosis. I was just looking back at some of the first websites we visited one year ago. CHOPS (Children's Hospital - Philadelphia) has a new DVD for families who have been diagnosed with CDH. I'm really interested in it because it says it talks about research. Anyways it can be accessed through my CHOPS link at the bottom of the page - I hope this can help someone.
Krista
Tools 
