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10 luglio

Another rainbow

At our family's fourth of July party (one month to the day from Jolee's passing), we had a rainbow sighting.  We didn't really want rain that day - but it meant a rainbow!
 
It's amazing how many visits our space has had, over 11,000!  If we'd have known that when we started, I'm not sure I would have gone through with it.  We debated sharing all the details with anyone who has internet access.  But, it helped our family and friends get to know JJ and her journey.  We were also so glad to meet families of other CDH babies this way and gained even more support.  One comment we received was from Audrey's grandpa (I'm guessing from his page).  He suggested the book "When Bad Things Happen to Good People."  I'm not sure that I would have read it so soon, but my sister got a copy and I ended up reading it all this past week.  It helped put some new perspective to some of the thoughts and questions I've had.  "Sometimes there is no reason" is one of the chapters and also "God can't do everything, but he can do some important things."  Anyways, I don't have the energy for a full book report but I thought I'd share that I found it helpful.  Next I plan to check out the book that Lauren and Jana have talked about, "Empty Cradle, Broken Heart."  
 
I had my postpartum appointment.  I guess I picked a good time to go - the day after the 4th and just before lunch.  The office was pretty quiet.  My doctor and nurse were just so kind.  We talked about how people can be afraid to bring your baby up or how you are doing because it upsets them to upset you.  I know how this is from when my dad passed away while I was in my first year of collage.  We're blessed to have so many people reaching out to us.
 
Pray for another CDH baby and his family.  Judah was born the end of June at Emanuel - he's currently on ECMO and not doing well.  He has a webpage you can get to through Baby Silas' link at the right.
03 luglio

Rainbow sightings

Can't believe it's been a month since JJ has been gone.  We miss her so and think of her so much.  Still have a range of emotions going on.  There is still the shock, questions of why and anger.  I know that I should remember the rainbow that we saw going home the day JJ died but I still get so caught up in all the other feelings.  Thanks to Kylie's mom for telling us about their rainbow sighting.  It means so much that you shared that with us and think of JJ too.  We haven't seen any rainbows in the sky here because we've had a good dry spell, but we have seen a few little rainbows in the spray of Blake's sprinkler.  We also got a picture collage from Shawn showing us in the Children's Garden with a rainbow coming into the garden and Jolee in the sky (it's slide 9 in the current album).
 
My postpartum appointment is on Wednesday.  I know it will be difficult to go back to his office, right next to the hospital and Ronald McDonald House.  I could have gone back to my midwife's group but decided to see the perinatologist one more time.  Can't help feeling attached to the doctor who we've gone through everything with.  We received cards from his office as well as the neonatologists and surgeon.  They all wished too for a different outcome and thought Jolee was a brave little girl.
 
The bracelets have gone over very well - we'll have at least $250 to donate to the children's hospital and will be able to get a brick for JJ in the garden.  Thanks for everyone who's supported us in that.