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August 04 Anniversary and Rainbow SorbetWe've been missing Jolee now for two months. Just want to share a couple things. The following is a poem written by Jolee's great aunt Mary called Jolee's Rainbow:
Oh, beautiful rainbow, what do we see?
A thousand little angels and our sweet Jolee,
Who crossed your golden arc to the azure above,
To peace and comfort, in the cradle of love.
Another thing I've read in a couple places:
When your parent dies you've lost your past, but when your child dies you've lost your future.
I really identify with this as I've experienced both. With the loss of Jolee, I feel lost. We wanted her and we'll always have an emptiness where she should have been.
Can't help but continue to follow the stories of other CDH babies and their families. Our deepest sympathies to the families of Baby Mert and Baby Judah. Thinking so very often of Baby Joseph and his mommy. Congrats to Baby Jackson for going home!
Trying to do things to memorialize Jolee's life. We've got things started to design a marker at the cemetary - of course it has to have a rainbow on it. Getting things gathered for a scrapbook. I've written a letter with an idea to honor JJ - I'll share more later if I get a response. Jolee's papa got a tattoo with her name and heart. Joe wants one too but I told him we have to pay a few other bills first - he has a huge fish tattoo that cost $4oo! I'll try to get tattoo pictures up sometime. I did add a picture of a rose we received as a gift - it's called "Rainbow sorbet." It turns so many colors as it opens up from the bud. See the picture - it's the last slide on the current album.
 Krista |
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